Dinosaurs and cyborgs

Last night's sunset

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This weekend I saw a lot of beauty.

I saw Dinosaur Ridge, archaeology made real and present. I saw bones, almost the consistency of amber, embeded in rock, from one of the first places on earth where dinosaur bones were discovered.

I could see how easy it was to discover, too, because the continental plates collided and lifted up history so that it was bare to our eyes. All that history could be read easily, thick rocky layer after thick rocky layer, from where it jutted at an angle for the rain and wind and snow to lay clean.

Up in the mountains, walking into the clear sky, I saw such a different world than I’m used to. The Rocky Mountains are no swamp, and it reminded me of the perspective changes of my childhood, driving from the rainy and sleepy town of Hilo — out of the clouds — and up the volcano into the sun.

Old Geologists never die.

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Denver is beautiful! Watching my dad roll his wheelchair with determination around the edge of a cliff was even more beautiful.

Eating a fine meal of Moroccan food with him was  just lovely, especially when he told a tale of traveling in Afghanistan and eating boiled sheep’s head in the tent of a local.

Being with him helped me think through a lot of prejudices, and see a lot of prejudices.

One more photo before I pass out for the night. Seriously, it's tough keeping up with dad!

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There was a moment at Craig Center when I realized what it was like to be dehumanized.

For a little while, whenever I passed a wheelchair-bound person in the halls of the medical center, I’d automatically avert my eyes, for no good reason that I can discover within myself. Was it my own inability to figure out my emotional reaction, or perhaps a faux-politeness to allow a person his or her own emotional space?

But then I caught the strangely ashamed look of a person that I walked by without acknowledging, his eyes cast down as if to bear the lack of a human gaze. I realized that not looking at someone is the opposite of affirming their life. I realized that my reaction was more about me than them, and I focused on truly looking at the wheeled people, into their eyes so that I could smile and say hello and treat them like any other human.

After that, it became easier to comprehend that we’re simply lucky nowadays.

It is so beautiful here that I wish a real photographer like @qwistlove would come photo it.

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We’re able to become cyborgs much more than we ever have before. Those people whose bodies have stopped functioning in one way or another, but who can keep the important parts of themselves alive through machines, wheels, things that give them freedom, they are a rudimentary wave of cyborgs. I remember stories of one person with an external heart, one person with a mechanical arm. We’re reinventing ourselves with technology, but remaining human within — but only if we can can treat technologically-assisted humans as human.

I spoke to a woman whose husband has been a quadriplegic for 30 years. The woman used all kinds of slang to refer to people’s conditions. “I met a little five year old boy who tripped on his shoelaces and became a partial quad,” she said. “That man over there is a para.” There’s a culture, and it’s strong at Craig, with its own language and connections and emotions.

Me, dad, and the girl (Emma) holding his knees up. Much harder than it looks.

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Next week, my dad moves away from Denver and the fine facilities and supportive staff who help him get used to his body and keep him feeling human. I hope this transition is easy, and that Hilo can open itself wide to take back a beloved adopted citizen.

I’m with him in my mind. I’ll try to journey with him as best I can.

Sometimes the body needs to complain

I woke up allergic to myself. Swelling from the inside, coughing up a bunch of phlegm. Days like today I remember that chemotherapy only begins when they inject it in me. It keeps going until it’s out of my system entirely.

So here I sit at work, popping Sudafed, trying to focus. The coughing comes and goes, but mostly my body feels tired everywhere. It feels tired on the inside, as if all my cells are working extra hard to make everything function as usual.

I admit that I dislike doing this to my body. I work on health for the space between treatments, and then willingly sit in the chair to knock myself back. All of us with cancer are faced with this, our foe is inside of our own body, we battle ourselves to see who wins.

In the chemotherapy chair last Friday I sat beside an old man whose wife hovered over him anxiously. She fed him bananas, yogurt, vitamins, rice stew, anything to get him to eat. “He doesn’t want to eat anymore,” she said to me anxiously. “How do you keep healthy between treatments?”

“Every body is different. Whatever his body needs and wants,” I replied.  ”I hope you can find it.”

My stomach doesn’t play nice between treatments either, and the less I eat for a few days, the better. Due to the nature of my cancer, digestion takes second place to coping with the treatment, and this gets uncomfortable. Still, I use what natural remedies I can, and sometimes it almost feels like a familiar (if slightly masochistic) routine.

What do I eat? Ginger, in all forms. Ginger tea, ginger candy. Khow mun gai (Thai rice cooked with ginger topped with chicken and ginger sauce). Ginger on top of ginger, but just enough to get me by. Then, I drink protein-rich smoothies, and when my stomach burbles in protest, ginger ale. Mint occasionally helps too, but not as much.

When the bloated and puffy feelings begin to subside, I try my best to exercise, a little each day. Yoga helps my joints so that I don’t get gout, and walking helps me reconnect to the world in my own ritual.

The new house is restful, and my family does what they can. I’m blessed in all kinds of ways, and sometimes counting all of these blessings is what helps most until my body bounces back enough for me to breathe again.

A green and muddy space

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(All of these photos were kindly taken for us by Kasia Momot!).

This past Saturday I looked out into my backyard and saw a lot of filthy children playing with sticks and wallowing in mud. I recalled long summer afternoons in the countryside of upstate New York doing the same, and felt such a sense of peace. I guess I’d never really thought about the creative kid space that owning a tree and some dirt would bring, but now I do, and it’s awesome.

We’re in our house, and I guess (universe willing) this is where we’ll be!

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Mid-century colonial, is that a thing?

Recently, my friend Kasia asked me about my taste in furnishings. This was a deeper question than she knew, partly because I’ve moved so often for so much of my life that everything that I own only survives because it’s portable. (Thirty boxes of books are totally portable, hush.)

I also grew up with my father in an apartment that had no furniture. Actually, we did have a bit of furniture: a rocking chair, a kitchen table, and a low table and pillows that we picked up from a second-hand store. My father taught me to love a lot of things, but furniture was not one.

My Thai family, on the other hand, absolutely informed my taste. My first few years were spent in my mother’s parents’ house in Bangkok, and I returned to visit fairly often. Their style was a mix of British Colonial and Thai, and included a low outside table that my grandma sat on to cook, and floors made of well-polished teak. Everything was dark wood and upholstered in white with clean, spare lines. The scent of the whole house was a mix of sandalwood and the incense from the room where the Buddhas were kept.

So I thought I’d compile a little list to show my taste; spare lines and mid-century wood with a bunch of bright Moroccan stuff thrown in. These are from West Elm, Overstock, Pier One, and Zulily.

Read the full post »

That terrible moment

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Mandi of the blog Making Nice in the Midwest

A blogger whom I’ve been reading for a while just found out that she has cancer. Her tumor-removal surgery turned into something worse, and now she’s in the middle of discovering the extent of it. Mandi wrote a paragraph that struck me so deeply that I had to post it here:

On Monday, while everyone else was playing April Fool’s jokes on each other, I was staring at my grandma laying in her casket and contemplating how to tell my family I have cancer as we all gathered together after Grandma’s unexpected death. I just wanted someone to shout ‘April Fools!’ and for Grandma to sit up in her coffin and for me to not have cancer any more. (Source)

Cancer changes everything. It nailed my awareness to the present rather than the future or past, and threw every second of my life into the sharpest relief, to the extent that even grocery shopping felt epic. I imagine that Mandi’s mind is spinning right now. How long, how far, how much pain, what next, and will I have to give up what I love? All of those questions crowded into my mind too, and for a while it was like living in a humid climate of sadness.

At the same time, I found that cancer inspired a lot of mental housekeeping. What am I living for? I need to do it, and enjoy the hell out of it, as much as I can. I need to reconnect to the people that I love, and make an effort to stay in touch. I need to maximize the joy, however I can.

I’m not sure what life is about, and never have been, but surely if it’s about anything, it’s about living in a spirit of love and joy. I wish that on you, Ms. Mandi, with all my heart.

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